Pearl River County couple fighting to save 6-month-old son - WLOX.com - The News for South Mississippi

Pearl River County couple fighting to save 6-month-old son

6-month-old Sawyer Jarrell suffers from Menkes Syndrome (Photo source: WLOX) 6-month-old Sawyer Jarrell suffers from Menkes Syndrome (Photo source: WLOX)
Sawyer is given five different medications twice a day, including copper injections. (Photo source: WLOX) Sawyer is given five different medications twice a day, including copper injections. (Photo source: WLOX)
PEARL RIVER COUNTY, MS (WLOX) -

A Pearl River County couple is in a battle to save their infant's life. The 6-month-old boy suffers from a rare disease that is often fatal.

The couple says the hope they need is coming from their faith and the Gulf Coast community.

At first glance, 6-month-old Sawyer Jarrell looks like a healthy, big, blue eyed baby boy, but he suffers from a rare, life threatening disease that one out of every 300,000 newborns come into the world with.

It's called Menkes Syndrome.

"Because of that defect, it almost enables the body's ability to transport and absorb copper properly. Copper is a very essential mineral in our bodies. It's responsible for our bone health. It helps form blood cells to keep our blood vessels in good condition," explained Sawyer's mother, Mary Jarrell.

Little Sawyer suffers from seizures and is mentally and physically under developed. Jarrell says Sawyer is not doing the things most infants do at his age.

"For Sawyer to raise up his head, he can't do that. He can't roll over. Most babies at six months, they can roll over, they can crawl, some are even pulling up on things," said Jarrell.

Sawyer is given five different medications twice a day, including copper injections. He's part of an experimental medical trial at the National Institute of Health in Bethesda, MD.

People all over the Coast have rallied behind baby Sawyer, helping to raise money for his medical needs. This includes the Picayune Police Department.

"We live in a community, Pearl River County plus in the South, where everyone has a big heart," said Lane Pittman, Chief Investigator with the Picayune Police Department.

Infants diagnosed with Menkes Syndrome often don't live past the age of three, but there are documented cases of a child making it to age 10.

"We realize it may not end well with Sawyer that ultimately he can die from this disease. If that's the case, I want people to see my faith in God, because he's the only way we've gotten as far as we have. He's the only way we've been able to get by each day by the strength he provides us with," said Jarrell.

If you'd like to help the family, you can make a donation at any First National Bank of Picayune branch in Sawyer's name. There is also a GoFundMe account set up at gofundme.com/sawyerlane.

Team Sawyer is also raffling off a Savage 7mm Remington Mag. rifle for $5 a ticket. $10 buys five tickets. Contact Toni Farmer to make a purchase at 601-916-3566 or 601-347-1674.

There will be a benefit turkey shoot held for baby Sawyer on Sunday,

March 8, at the American Legion at 2500 Union School Road in Picayune. Registration starts at noon the day of the event.

The benefit will include a live band, live auction and smoked chicken lunch plates from Sho-Nuff BBQ.

To inquire about upcoming fundraisers for baby Sawyer, email Teamsawyerlane@Gmail.com

or visit the Picayune Police Department's Facebook page.

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