Man cycling cross country for rare disease, makes a stop in Sout - WLOX.com - The News for South Mississippi

Man cycling cross country for rare disease, makes a stop in South Mississippi

SOUTH MISSISSIPPI (WLOX) -

It's Greg Crawford's fourth summer biking across the country, but he says spending eight hours a day on a bike is well worth it.

Greg is biking to raise awareness and money for an ultra rare and fatal disease called Niemann-Pick Type C.

The deadly disease only affects about 300 kids in the world. His desire to bike for this cause came after three of legendary Notre Dame Football coach, Ara Parseghian's, grandchildren died of the disease.

He says this year is special, because the money he raises will be used to help fund clinical trials.

"I was so inspired by the story of the Parseghian family that I wanted to do something, but I couldn't do something in the laboratory since I was not a trained biologist. I thought I could ride my bike across the country to raise money and funds for other scientists to be able to study for a cure or therapy.

Crawford has just two weeks left of his cross country journey and he will have biked 11, 200 miles. If you would like to donate to the cause you can visit www.roadtodiscovery.nd.edu.

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